Health Voices Victoria is dedicated to strengthening the engagement of communities and people with lived experience in health and related sectors.
About us
Vision
A future where the expertise of communities and of lived experience is valued and embedded into every effort to improve health and wellbeing.
Purpose
Health Voices Victoria’s purpose is to enable and improve the engagement of communities and people with lived experience within health and related sectors.
We advocate for high-quality engagement as standard practice, because transformation happens when the people the health system is designed to support have seats at the table as equal partners.
We contribute to building the trust, evidence, systems, skills and confidence needed to ensure this work leads to meaningful influence and lasting impact.
What we do
We work with a wide range of organisations and people and across multiple sectors related to health and wellbeing. This includes work in policy, service design, service delivery, training, evaluation and research.
Recruitment
We communicate regularly with our network of more than 2,000 highly engaged and diverse community members. We tailor recruitment campaigns to help you connect with the people you need to partner with in your project, organisation or initiative. We handle the selection process, ensuring a mix of perspectives and experiences, and we support clear and thoughtful communication before and after each opportunity.
Training & development
We create practical, inclusive and enjoyable learning experiences for anyone looking to build their skills and confidence in the art and science of community and lived experience engagement. Sessions range from short workshops to immersive programs and can be delivered online or in person. Topics include:
- Consumer and community involvement in research
- Trauma-informed engagement and facilitation
- Creating psychologically safe-enough environments
- Effective engagement on committees
- Co-design essentials
- Hosting community-led Kitchen Table Conversations
Lived experience and community engagement
We design and deliver engagement that is respectful, trauma-informed and grounded in genuine relationship-building. This includes advisory group formation and management, leading activities such as workshops, focus groups, interviews, surveys, and community-based approaches. We thoughtfully apply a mix of different levels of engagement depending on the project, the context, and the available time and resources. This ranges from consultation, through to co-design and consumer led initiatives. We will always call it what it is.
We often work alongside advocacy groups and grassroots partners to reach people who are seldom heard, and to tailor engagement so it genuinely suits the needs of different communities. Our work ranges in scale and duration from one-off engagements through to multi-year initiatives.
Co-design
We bring people together to build a shared understanding of what is needed and to shape solutions collectively from the very start of an initiative. We tailor each co-design process, drawing on different models to create a fit for purpose methodology that we implement and evolve as we go. Our approach always supports shared decision-making, carefully wrestles with power dynamics and creates space for different forms of expertise to interweave in meaningful ways. We evaluate and refine our approach as we go. Co-design takes time and resources — these projects unfold over many months, and often over several years.
Research partners
We help researchers involve communities and people with lived experience throughout the research cycle, from defining research questions that genuinely reflect community needs pre-grant, through to translating findings for broader impact. We can support researchers to create a practical consumer and community involvement plan for a research grant and can partner as part of the research team to enable and support this work if successful.
Engagement framework development and implementation support
We work with organisations to create or update Engagement Frameworks to guide their efforts to evolve and strengthen the engagement of people with lived experience and communities at all levels, through to governance. These are designed to be practical, values-driven and built through collaboration. Through workshops and iterative review, we identify strengths and gaps, articulate shared principles and develop a clear path toward meaningful engagement. We also provide support to put the Framework into practice, helping teams implement their Engagement Framework into day-to-day processes, behaviours and ways of working.
Our values
We are curious
We respectfully seek and embrace diverse perspectives. With open minds and hearts, we listen deeply and value the inherent wisdom of each person with whom we work.
We are authentic
We individually and collectively reflect on our actions, and continuously learn and grow through our work. We recognise our privilege and potential biases, and encourage others to do so too.
We act with integrity
We are transparent and accountable for our actions.
We are inclusive and equitable
We recognise that some voices are hardly heard and work to engage in ways that are meaningful, safe and promote trust and healing. We place additional efforts into communities that face the biggest barriers to health and wellbeing due to being marginalised and discriminated against by systems and society.
We partner
We believe in the power of collective effort. Committed to collaboration, everything we do comes back to building trusted relationships. Through partnerships, alliances and networks, we share knowledge and resources and find solutions together. We avoid duplication and celebrate our own and others’ achievements. Instead of competitors, we see potential allies.
Our story
Whilst Health Voices Victoria is newly established, it is connected to a long history. We have evolved from the Health Issues Centre, which was Victoria’s peak organisation for consumer engagement in health for almost 40 years.
The Health Issues Centre story started in the early 1980s at a time when the prevailing culture in health was to do it for us, not with us. It was formally established as the peak health consumer agency in 1985. This was at a time when there were few, if any, seats at decision-making tables for community members or people with lived experience.
The organisation operated for 39 years as an avid champion for health consumers across the state but ceased service delivery on in March 2024 due to sustained financial challenges.
But in May 2024, a new chapter in this story commenced. Deakin University’s Deakin Institute for Health Transformation announced that it would be the custodian of the legacy created by the Health Issues Centre.
The establishment of Health Voices Victoria within Deakin marks a new era for community and lived experience engagement in Victoria.
Meet the team
Alison Coughlan - Senior Manager
Consumer and community engagement has been a great passion for Alison for almost thirty years now. She feels that it is such a privilege to be the Manager of Health Voices Victoria, as she gets to work every day that she cares about so deeply with many amazing human beings.
Jo Szczepanska - Manager of Innovation and Service Development
Jo is really excited about this role’s potential to support community members and health services to partner in new ways, and she’s particularly keen on building networks of support and next-practice.
Katherine Burnard - Consultant, Learning & Engagement
Katherine’s role is dynamic. One day she is delivering training on consumer and community engagement, and the next day, she’s planning a co-design workshop. No matter the project, building relationships is key to Katherine’s work. Whether that be with lived experience advocates, researchers, grassroots groups, or value-aligned people doing great work in the community – it’s all about collaboration.
Jess Frank - Consultant, Co-design & Engagement
Jess is in the unique position of working with Health Voices Victoria and Western Victoria Primary Health Network (WVPHN). Her role sits at the intersection of creativity, systems thinking, and humanity, helping researchers and health teams bring best-practice co-design to life so that consumer and community voices do not sit on the fringes and genuinely shape what we do.
Pia Sappl - Lived Experience Research Fellow
Pia describes her role with the centre as her dream job! She was thrilled to join the team in October 2024, and she is currently working part time (2 days per week) which allows her to look after her health. There are so many things that Pia loves about her role; her wonderful colleagues, the interesting and meaningful work, and being able to use her professional skills in research in combination with her lived experience knowledge.
Alana Faust - Senior Engagement Officer
Alana facilitates engagement and collaboration between people in the community and organisations, to improve outcomes and shape better and fairer systems. As a big people person, Alana has always been drawn to the collaborative aspects of this role, and since joining Health Voices Victoria, she has also been trusting herself to experiment and lean into the creativity of the process.
Abdurrehman Nadeem - Senior Engagement Officer
Abdurrehman loves the multifaceted nature of his work. Not only does he have the privilege of working together with people with lived experience, but he also has the opportunity to contribute to resource development and training initiatives that support meaningful engagement between health organisations, researchers, and the communities they are looking to engage with.
Anny Biagioni - Administration Officer
Anny’s favourite thing about her role is that it’s so eclectic; no two days are the same and she’s always getting opportunities to experience bits and pieces of the many projects that the wider team work on. But perhaps most of all, Anny loves having the opportunity to build bonds of trust with community members and stakeholders, even via communication over the smaller or often-forgotten fiddly admin tasks.
Ali Peipers - Project Consultant
Ali has worked as a Project Lead on several Health Voices Victoria projects and enjoys being across lots of different elements of the work that the Centre undertakes. She also enjoys that the Project Consultant role gives her the opportunity to work directly with consumers and community members (which is so insightful), as well as project partners.
Steph Thow - Manager, First Nations Engagement
Steph sees her journey with Health Voices Victoria as a garden – if she is the seed, Community is the soil that sustains her. Everything Steph does is grounded in being led by Community. She believes that meaningful engagement starts with humility. It means not arriving with a solution but arriving with open ears, as we were born with two for this reason, for listening. Steph believes that Community holds so much knowledge, and her role is to help create the space for it to grow.
Ajay Johns - Social Work Placement Student
Ajay joins the Health Voices Victoria team as a Bachelor of Social Work student, exploring ways that we can strengthen youth engagement in health. He really enjoys that his role focuses on approaches to consultation, co-design, and consumer-led initiatives to positively influence and strengthen health systems and structures.
FAQs
What is community and lived experience engagement?
Language is a powerful tool. No single set of definitions can describe how every person experiences their health and wellbeing, or how they define themselves. We acknowledge the many terms that are used to describe people and the roles that they play, and that language and preferences continue to evolve over time in the health consumer movement. After deep thinking and discussion with people across the health sector and beyond, we have chosen words that feel ‘right-enough’ to describe our work at this time.
Here’s how we define these terms:
Lived experience – People with a personal experience of a health condition or conditions including carers, supporters, family members, chosen family and kinship groups.
When we say lived experience, we mean it to encompass living experience too – recognising that some people continue to live with their experience daily. We value the deep and rich expertise that comes from lived experience.
Communities – Groups of people who share common characteristics, experiences, or interests.
These may be shaped by factors such as geography, culture, race, ethnicity, age, faith, gender, abilities or sexuality. A community is not limited to a physical location; it can also exist online. Individuals may belong to multiple communities, and these connections can evolve over time.
Engagement – An umbrella term reflecting a range of ways in which people share their views and expertise to inform, create and lead change. This may be through different methods and at different levels e.g. consultation, participation, collaboration, partnership and leadership.
Who do you work with?
Members of communities, including people with lived experience, are our central focus as we enable and support their engagement within health and related sectors.
We work with people who bring lived expertise – as leaders, change makers, and community members – united by a shared goal to improve their own and others’ experiences of health and wellbeing.
Partners we naturally align with include organisations in health and related sectors, advocacy and consumer organisations, community groups and condition- and population-specific organisations and groups.
We work with people in formal consumer roles, volunteers, leaders, policy makers, clinicians and researchers.
Where do you work?
Improving health and wellbeing requires a wide lens. We see health and wellbeing as more than the absence of illness. It includes living well, free from stigma and discrimination, and addressing social, cultural, environmental, commercial and economic determinants of health – the wider forces and systems that shape our lives. We engage from prevention to early intervention, across treatment, care and support, and across the life course.
How can I get involved as a lived experience leader or community advocate?
The best way to stay in touch with us and find out about collaboration opportunities is by signing up to our monthly newsletter, The Chorus.
How do I engage Health Voices Victoria's services?
The first step is to email us at healthvoicesvic@deakin.edu.au with a short summary of the support you’re looking for. Someone from our team will then get in touch to chat about your needs and how we can best work with you.
Resources
Before its closure, Health Issues Centre developed many resources to support healthcare organisations and consumers to partner more effectively. These resources were previously available on the Health Issues Centre website, which has now shut down. We wanted to ensure that these resources were not lost to the sector, so we have created this resource library.
Community Advisory Committee (CAC) Evaluation
- Evaluation Framework 2022:
This framework provides a consistent approach with tools and resources that can be applied or adapted to guide internal evaluation and enable continuous quality improvement of a health service’s Community Advisory Committee. - Evaluation Framework 2023:
This framework has the same purpose as the 2022 version, inclusive of some updates (reflected on page 3). Updates include additional requirements for co-production with CAC members, further information about project management, program evaluation, the Model for Improvement, measuring and reporting CAC impact, and improved resources. - Evaluation Checklist:
This checklist helps health services take a planned approach to designing, delivering, and evaluating Community Advisory Committees. - Evaluation Plan Template:
A ‘living document’ that evolves as the evaluation of the health service Community Advisory Committee progresses. This template can be used to provide clarity on what the evaluation is meant to achieve, detail who is involved, and define key deliverables and timelines. - Evaluation Questions Bank:
A tailorable template and a repository for questions that may guide the Community Advisory Committee evaluation process. - Evaluation Report and Action Plan Template:
This template can be populated with information that summarises the findings and recommendations for improvement from the evaluation of a Community Advisory Committee. - Stakeholder Engagement Plan Template:
This template guides plans to communicate with stakeholders to attain their support for the Community Advisory Committee. It specifies the frequency and type of communications and activities, to build and maintain engagement with the evaluation at all levels. - Training slides: Introduction to Program Logic (CAC Evaluation):
An introduction to the purpose, background, theory, outcomes, and implementation of a Community Advisory Committee evaluation process. - Program Logic Template:
This template can be used to discuss and document the intention of the Community Advisory Committee evaluation at each stage of the process. It is designed to be used in a workshop with all key representatives and stakeholders involved. - Middlemore Consumer Engagement Questionnaire (MCE-Q):
This questionnaire is designed to help understand the unique perspectives of health consumers who represent their communities in health governance groups.
Inclusive Engagement
- Consumer Model: Partnering with Healthcare Organisations:
“This model highlights the opportunities that exist for consumers to contribute to transformational change of the health system, no matter their level of experience. It outlines how consumers and health organisations can
work in an effective partnership that is mutually beneficial”. - Aligning the Partnering with Healthcare framework with the Rainbow Tick:
This fact sheet advises health services how to follow Rainbow Tick guidance when developing plans to fulfil the Partnering in Healthcare framework. - Guide for Inclusive Community Consultations:
This guide is designed for health services staff and outlines the main considerations when undertaking consumer consultations. It covers various methods, planning, risk management, and step-by-step guidance on all stages of the consumer consultation process. This guide is a companion to ‘Guide for Engaging Diverse Consumers in Organisational and Governance Structures 2022’. - Guide to engaging diverse consumers in organisational and governance structures:
This step-by-step guide is designed to be used when consumers are invited to be part of internal structured processes and systems as partners in decision-making in healthcare partnerships. It includes descriptions of the processes, planning stages and methods for engaging with consumers from diverse backgrounds on service governance, design, development, implementation, and evaluation. This guide is a companion to ‘Guide for Inclusive Community Consultations 2022’.
Partnering in Health
- Consumer Model: Partnering with Healthcare Organisations:
This model highlights the opportunities that exist for consumers to contribute to transformational change of the health system, no matter their level of experience. It outlines how consumers and health organisations can work in an effective partnership that is mutually beneficial. - Six steps to successfully onboarding Consumer Advisors:
This guide supports health organisations to create processes that ensure consumer advisors are provided with the support, information, and resources that they need to be effective in their advisory roles over the first 6-12 months. - Six steps to becoming a consumer advisor:
A visual resource to help guide people navigating the early stages of becoming a consumer advisor. - Consumer Advisor Skills Checklist:
This checklist is a way for consumers to reflect on what advisory skills they have developed over time, and what areas they would like to further develop. - Consumer Advisor Skills Checklist (Editable):
A word version of the Checklist that can be completed electronically. - Guide for consumers to self-assess the quality of their engagement:
This guide supports consumer representatives or advisors to self-assess the quality of their engagement in healthcare organisations.
Training Others in Consumer Engagement
- Consumer Engagement Train the Trainer Manual:
This manual contains information that will help to train others in consumer engagement. It explores the characteristics of a good trainer, the principles and barries in adult learning and how to address them, developing learning outcomes and training materials, implementing a training program, monitoring and assessing participant learnings, and self-assessing trainer performance. This manual is a companion to ‘Consumer Engagement Train the Trainer Toolkit’. - Consumer Engagement Train the Trainer Toolkit:
This toolkit supports the trainer in planning, implemetating, and evaluating consumer engagement. A series of consumer engagement tools and templates and consumer engagement support resources are available in this toolkit to help trainers and trainees to implement best practice consumer engagement in organisational committees and governance. This toolkit is a companion to ‘Consumer Engagement Train the Trainer Manual’.
Our newsletter
Each month we share our Health Voices Chorus newsletter – with our subscribers. In it we share:
- Updates from the team
- Engagement opportunities for consumers and communities
- Resources and events
If you would like to receive this newsletter please subscribe using the form below.
Curious about what we send or missed an issue? Take a look at past newsletters here.
Get in touch
Deakin University,
221 Burwood Highway,
Burwood VIC, 3125